I am grateful

I have been through a roller coaster of emotions this weekend.  I started the day on Friday with Kera's MRI.  I wasn't especially worried about it before hand since I have seen how she's been doing and how well she's been feeling.  After the MRI we went to clinic to talk with the doctors about the results.  They discussed the results and showed us a picture of the tumor and luckily the size of the tumor has not gotten any bigger.  The fact that the tumor itself has not grown was good news. Even better, she is symptom free and doing well physically, and that is the most important thing.
But just being in clinic and looking at pictures of the tumor and being at primary children's again makes the whole process "real" again.  It's easy to go about life and enjoy seeing her able to do all of the things she used to do, but this visit snapped me back to reality and it hurt! I know that she has this DIPG tumor, but it's been nice not being around doctors and surrounded by all the sadness.  Does that make sense?  So I've been feeling kind of depressed and emotional all weekend since the appointment.
I have been fortunate to have people around me who have been willing to listen to me and who have allowed me to cry and talk it out.  I have come to the conclusion that it's good to get the emotions out, but I also need to be more grateful.  I am so grateful that she is doing well and feeling great!  After Kera was diagnosed I didn't know if she would ever be able to do so many things again.  And for the most part, she is doing them!  That is a miracle and an answer to many prayers. People have been telling me how happy they are about the results, and I was thinking in the back of my mind, but she still has the tumor, and it isn't going away.  Although that may be true, I need to celebrate the victories that we have been given, and just enjoy today.
Disney world was amazing by the way.  The volunteers at Give Kids The World were great.  The GKTW program is amazing!  It is a non profit organization that allows sick kids to come and stay at their resort.  Make a wish provided our travel to Floriday, but they are the ones who issue the passes to disney world, hollywood studios, and sea world. They also have daily activities for the kids like trick or treating on tuesday, a birthday celebration activity, Christmas on Thursday, and wonderful events each day.  The resort offers all the kids free food and lodging (we didn't stay here because they were booked and they set us up at a Disney resort which was also amazing).  They also had a pool, a mini golf place, a movie theatre, playground, a free arcade, carousel, and a kids day spa.  They also work together with the make a wish program to provide kids with their wish of a Disney world vacation.  We made so many wonderful memories!!  Disney also gives each family a free photo pass where we can have all the park photographers take our pictures at the disney parks and they put them all together on a cd.  I'm in the process of editing all the pictures and soon I will post them on here.  I'm so thankful to programs like make a wish and GKTW who can help families with very sick children to make priceless memories and offer these families a bit of hope and magic while the child is battling a life threatening illness.  Thank you to my wish granters, make a wish, GKTW, family and friends who came to Kera's star raising party and for those who have sent cards, gifts, and well wishes to Kera. You all mean so much to us!