Sunday July 22, 2013-
Yesterday was a difficult day.  Kera was not feeling well all day.  She was very irritated with little things.  If her brothers came in the room she would scream at them to go away.  Noises are distracting to her now.  She doesn't want to listen to music, she really can't read books and anyone reading to her is hard for her, I think because she is having a hard time processing things.  The sensory parts of her brain are affected with this tumor as well.  It seems like the steroid pills have helped with her eye tracking and her dizziness, but now the cognitive abilities and balance, depth perception, sensitivity is getting worse.  She is also having a hard time swallowing her food as well, and that is scary, because the doctor said the swallowing could get worse and is weakened, so food could travel down to her lungs instead of her stomach and she could asperate.  We need to watch how she's eating and make sure she eats very slowly.
I was feeling very hopeful starting out yesterday, but after seeing how things have gotten worse, it's so hard to continue being so positive.  I am scared!!! I just thought we would see improvements with the steroid pills, not worsening symptoms.  I am calling the doctor this morning.  I feel like I have so many questions.  Before I had none because I didn't know what questions to ask and I was in shock.  No I feel like I have so many questions.
Today our family and my extended family is fasting for Kera.  We are going to all end our fast at 5 p.m. with a prayer.  I know prayers will help her, and I know that I need to continue to be faithful.  I just hate seeing her like this!!